Wow, we knew it had been a while since we updated the blog but hadn't realized that it had been months and months.
Chels has been extremely sick these last couple of months so I am going to do the blog completely now. So, hi everyone... it's Sherri, I would be the MOM! :)
I will update you on these past couple of months~ Chelsea was seen by Dr. Snape in January, insurance approved the pacemaker surgery (although we're still fighting portions of the charges) and she traveled to California for the second time the week of March 10th. She had the pacemaker implanted on March 11. We can't say enough good about California Pacific Medical Center. They def. went above and beyond in taking care of my daughter. After staying for a week and regaining some strength we headed home.
The pacemaker worked for a couple of weeks but by April we knew she needed adjusted. Her appt. was set to come back in May so we waited. We found out that Jeremy's sister was set to graduate the first of June so they then decided to postpone California until the first of June. Even though they had good intentions and really thought this would be okay it was extremely hard on Chelsea. There have been many, many, many days where she has not been able to get up out of bed and I think by the time she went back to Cali. this time she was worse off than the first initial visit. It was fun for them to visit family again though and sometimes these are things that Chels needs to do even though they are hard. She needs to start living again.
So, the fabulous Dr.s in Cali. adjusted her pacer to a 7 and we should see a difference really by this next week. She is scheduled to go back in August... Yeah!! maybe this time we'll take the kids...
Thanks to all that continually keep Chelsea in your thoughts and prayers. I wish I could say that we have a handle on the disease.. maybe not yet, but am always hoping so. We consistently pray for more funding for this horrible disease and hope and pray every single day that the doctors here at The University of Utah (which is a research hospital) will study more because the answers are right there in front of them. Why is it that the doctor in CA can look Chels straight in the eye and say "we have options and we have solutions... we will get through this..." but one of the best gastro docs in the state says, "sorry.... I'm done, don't know what else I can do for you"
We realize every second of the day that we are not the only one hurting in life. We all have our challenges that we live with. Please know that we pray daily for you all too!
Thanks for being our strength !!
Sherri
